Jon's Test and Results: The following tests have been throughout the years with extensive testing done in 2001 - 2011.

MRI's Echocardiograms EKG's Chest X-rays INR - blood thickness (Coumadin dosage - monthly Blood Work - blood sugar - kidney- liver- cholesterol - thyroid -sedimentation rate. Pulmonary Test - to check lungs, oxygen rate, etc. Sleep Apnia Test - to check sleep disorder and airway passage. Eye Exams - to test lens, retina, etc. Echo -blood flow to neck ( migraine) CT Scans - check abdominal aorta/arteries (angiogram)

MARFAN RELATED RESULTS: * Pulmonary and Sleep Apnia test show - mild retrictive lung disease and partial upper airway restriction. * Eye Test - no major lens or retina problems at present but should be monitored. JON'S MEDICAL FINDINGS AS OF December 2011             * MRI on lower back -- dural and tarlov cysts found * Have been seen by a cardiologist with Marfans experience. * Have been seen by a rheumatologist with knowledge of Marfans. Diagnosed with Fibromyalgia. * Awarded Social Security Disability. * Upper GI with small bowel follow thru - found bacterial overgrowth in small bowel which was treated with anti-botics and improved gastric symptoms. - Kidney Stones  - Tarlov Cysts  - Dural E Cysts   HEALTH UPDATES: - Had Arythmia -2 ER stays in 2007 and early 2008 - improvement seen by increasing atenenol from 100 mg to 125 mg daily.  - Stomach/Digestive problems improved since taking Protonix - 40mg and  swallowing food has improved as well. -Cellulitis - two hospital stays in 2006 - no problem since changing to an anti-bacterial soap and wearing white socks. - Increased pain in bones and joints - Diagnosed with Costochondritis in December 2010. INVESTIGATING: - Increased pain in bones and joints   - Daily head tightness and pain.  Greatly affects my ability to travel. -Increased dizziness.   *GOALS FOR 2012 and Beyond 1. Work to have Marfan Syndrome listed in its entirety in the Disability Evaluation Under Social Security Guidelines as a "Multi-System Disorder". 2. Improving hospital awareness (around the country and world) about Marfan Syndrome. (as of 12/07 - 3,400 + hospitals contacted) 3. Promote our MARFAN CLINICS at both CHILDRENS and BRIGHAM and WOMENS HOSPITALS IN BOSTON 4. Continue raising awareness of Marfans in the medical community with our Physician Awareness Committee.