CMLH and PAC

Marfan Awareness Initiatives

The following information is set up as downloadable file links. You may open each one and read the information, or if you choose, you may download the file.

1. Physican Awareness Committee Letter

2. Loeys Dietz Aortic Aneurysm Syndrome

3. Kathy Ackroyd Letter

4. Disability Workshop-Bios. JR- KK Contact Info

5. Update-Physicians Awareness

6. Update-PAC -October, 2009

 * Please feel free to contact me directly on the very latest Physician Awareness Committee status.
  
The CELEBRATION of MARFAN LIFE and HISTORY FUNDRAISER
information is available for downloading below.
 
CMLH II FLYER

* We held CMLH III on October 5, 2013.  We are planning to hold CMLH IV this year.
   ~Feel free to contact me at jrmarfan58@aol.com for more details on the event.