Enter content here

LIVING WITH MARFANS
NEW ENGLAND SUPPORT GROUPS
Enter content here

MASSACHUSETTS CHAPTER OF THE MARFAN FOUNDATION
PRESIDENT - JON RODIS
PHONE 617-846-4975 CELL 857-244-4522
E-MAIL:    jrmarfan58@aol.com and jrmarfan58@comcast.net
JR Website:    www.jrmarfan58.com

NH-VT Network Group
Network Group Leader - Kaddy Ackroyd
Phone:  603-893-0485
E-Mail:    Kaddy1953@gmail.com
EDS New England/Massachusetts Support Group
Co-leader:   Jon Rodis
Phone:  617-846-4975 Cell: 857-244-4522
E-mail:   wsalmgcdjm@aol.com and wsalmgcdjm@comcast.net 
ALSO CONTACT  JON RODIS  IN REFERENCE TO THE BELOW GROUPS AND PROGRAMS
1.  PHYSICIAN AWARENESS COMMITTEE-MARFANS
2.  PHYSICIAN AWARENESS COMMITTEE-EDS
3.  DISABILITY ADVOCACY FOR RARE DISORDERS
4.  Future: STICKLER SYNDROME MA AND NEW ENGLAND SUPPORT GROUP