LIVING WITH MARFANS
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Living With Marfans

Social Security Disability Checklist

This page was set up to aid anyone who is applying for Social Security Disability. Hopefully it will make the process a little easier.

  • File completed form with your local Social Security office. Make sure to always complete forms in full. Keep copies as back-up.
  • Call regarding state disability funds.
  • Contact the National Marfan Foundation - after the first denial of benefits - request a letter of support.
  • Make appointment with personal physician - advise of filing.
  • Compile Marfan support info - web pages, letters, research, etc.
  • See Marfan doctors for additional support and follow-up.
  • Get copies of all your medical records. Keep copies of everything in a folder.
  • Look for Marfan people within your state who have been approved.
  • Once you have been denied the first time, find a disability attorney that has several years experience and speak to the attorney immediately.
  • Make sure attorney has all info - medical records and all above.
    MOST IMPORTANT - Keep a daily health journal that lists all your symptoms, appointments, results, INR's, notes, etc.


Please click on the "downloadable file" to see or print out the Biographies and contact information of both Jonathan Rodis and Kathleen Kane Rodis.

BIOS of Jon Rodis & Kathleen Kane Rodis