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- File completed form with your local Social Security office. Make sure to always complete forms in full.
Keep copies as back-up.
- Call regarding state disability funds.
- Contact the National Marfan Foundation - after
the first denial of benefits - request a letter of support.
- Make appointment with personal physician - advise of filing.
- Compile
Marfan support info - web pages, letters, research, etc.
- See Marfan doctors for additional support and follow-up.
- Get
copies of all your medical records. Keep copies of everything in a folder.
- Look for Marfan people within your state
who have been approved.
- Once you have been denied the first time, find a disability attorney that has several years
experience and speak to the attorney immediately.
- Make sure attorney has all info - medical records and all above.
MOST
IMPORTANT - Keep a daily health journal that lists all your symptoms, appointments, results, INR's, notes, etc.
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