Living With Marfans

List of Marfan Related Conditions that should be investigated.

* scoliosis
* dural ectasia
* fibromyalgia
* temporal arteritis - pains thru the skull
* cerebral or spinal ischemia
* costochronditis - chest pain/sore ribs
* joint issues
* osteoarthritis - different forms
* stomach sphinctor muscles (weakness)
* cerebral spinal fluid leakage - causes severe headaches
* bone mineral density
* hypermobility
* swelling of the connective tissue
* peripheral neuropathy
* celiac disease
* kidney stones
* periodontal problems
* sleep apnea
* hiatal hernias
* atrial fibrillation (a-fib)
Doctors/medical areas that should be consulted are:
orthopedic/muscoskeletal/neurological/rheumatologic/
podiatrical/periodontal/physiological therapeutic

TESTS THAT COULD OR SHOULD BE PERFORMED:

+ Scoliometer - for bending and curve management.
+ CT-Scan - measure width of lumbosacral canal.
+ MRA - on arteries and vessels
+ MRI - on lumbar spine - dural estacia analysis
+ Spiral Computed Tomography _ on lumbar spine (shows pedicle width, laminar thickness and scalloping values)
+ Radiographs _ on pelvic and lumbar spine - check for ankylosing spondylititis.
+ Periperal Nerve Tissue Test - thru Neurology
+ Bone Mineral Density Test - dual energy x-ray absorptiometry (on hip and forearm)