FACTS THAT I HAVE LEARNED: Through my research that I have done over the last 21 years, there are certain tests that can be done to evaluate many of my symptoms.  Most of the tests that I had in the past do not relate to Marfan symptoms and the normal readings that have been received only address the average person not one with Marfans or a related connective tissue disorder. The following is a listing, in outline form, of Marfan facts that relate to the syndrome and symptoms I experience, along with analysis and possible causes.  I also am going to provide a list of tests that I have had as well as tests I most likely should take in the near future.

Marfans is a connective tissue disorder. Connective tissue is located in all organs and systems of our bodies. Specific areas that are affected are: the bones, the ligaments, the eyes, the heart, the blood vessels, the lungs, the fibrous membrane covering the brain, and the spinal cord. Connective tissue is weaker in Marfans people and other related disorders. (such as Loeys-Dietz and Ehlers-Danlos Syndromes) Marfans is a degenerative condition. We don't age well. (Now that we are living longer due to advanced testing, medications and surgeries, research is needed on raising the quality of life.) Joint laxity brings on Osteopenia and Osteoporosis. (it is also seen at much younger ages than the general population.) Difficulty for tissues to heal and rebound. Joint hypermobility causes tissue fragility. Hypermobility syndrome is linked to Marfans and related connective tissue disorders. (benign joints) Dural ectasia is present in a large percentage of Marfans people (even without back pain. More severe with age (36+). Scoliosis found in large percentage of Marfans people. Ranges from 20 degree and greater. A significant number of Marfans people who have had aortic surgery can have a higher rate of other surgeries on the aorta. (including the descending aorta)