Books to Read:  > Own Your Health - Roanne Weisman with Brian Berman, MD       Choosing the best from alternative and   conventional medicine. > The Official Patients Sourcebook         James N Parker, MD         Philip M Parker, MD

* List of Famous Marfs * - Akhenaten ( father of King Tut) - Abraham Lincoln - Han Christian Anderson - Robert Johnson - Sergei Rockmoninov - Niccolo Paginini (possible EDS) - Flo Hyman - Mary Queen of Scots - Charles DeGaulle - John Tavener - Vincent Schiavelli - Jonathan Larson

Things I Am Looking Into: (to improve overall health) ______ Tai Chi ______ Massage ______ Meditation ______ Beds ______ Yoga ______ Topical Pain Relievers  ______ Walking ______ Swimming

More Important Facts About Marfans ** It is important when having dental work that you pre-medicate with prescribed anti-biotics if you have a mechanical valve. Consult with your cardiologist. ** Very important to check out your abdominal aorta as well as your upper/thoracic aorta & heart valves. ************ CT or MRI Abdominal Scan *********** ** You must be your own/best advocate.... you know your body.