LIVING WITH MARFANS
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Living With Marfans

Massachusetts Chapter of NMF

On Line Support Group for Marfans

Medline Plus

National Liberty of Medicine

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THANK YOU
I would like to take this opportunity to say Thank You to the following individuals for their help.


My wife, Kathleen, who is by my side, supporting me in my quest to make a difference in helping sufferers of Marfan Syndrome. As a lawyer, she has aided me in applying for disability. She is willing to help other Marfan individuals with her legal expertise. She has also assisted me in helping others through the disability process. Contact Kathleen at http//www.kkane@spillanelawoffices.com

My mother, family, and friends who have been at my side through the worst of my illness.

Karen Wolk, MSW, MBA, and former NMF Director .

I want to thank my mother-in-law Sis Kane for helping me in writing and maintaining this website. Her passion for the Marfan cause has been a great inspiration to me.

A special Thank You to the following:
Karen & John Beliveau
Jay McGee
Martin Irish
Jane Harris
Dr. Joseph Kannam - Beth Israel Hospital-Cardio
Dr. Timothy Guiney - MGH-Cardio
Dr. Dwight Robinson - MGH-Rheumatology
Dr. Robert Johnson - Surgeon - Saint Louis University 
Dr. Chin Hur - MGH-Gastroenterology
Dr. Aleena Banerji - MGH -Immunology
Children's Hospital Boston, MA
Beth Israel Emergency Unit, Boston, MA
Suffolk University - Boston, MA

Dr. Michael Murray -BWH - Marfan Program

Dr. Ron Lacro - Childrens - Marfan Program

Dr. Jacqueline Wolf -B.I. - Gastroenterology

Amy Kaplan, RN-Manager-NMF's Information and Resource Center

If my story can help just one individual that suffers
from Marfan Syndrome, then I will be happy.

Thank you for your interest in my web site.
Please do not hesitate to contact me at anytime.

My email address JRMARFAN58@aol.com