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THANK YOU
I would like to take this opportunity to say Thank You to the following individuals for their help.
My wife,
Kathleen, who is by my side, supporting me in my quest to make a difference in helping sufferers of Marfan, Loeys-Dietz, Ehlers-Danlos
and related syndromes/disorders. As a lawyer, she has aided me in applying for disability and helping so many others
navigate the social security system. She is willing to help other Marfan and related disorder individuals with
her legal expertise. She has assisted me in helping others not only with social security disability but many other legal/family
challenges over the past 22 years. You can contact Kathleen at kkanelaw@comcast.net for more information on how she
can help you. My mother, family,
and friends who have been at my side through the worst of my illness.
I want to honor and thank my mother-in-law Sis Kane, who passed away during the summer of 2013, for not only
in helping me in writing and maintaining this website but her love and passion for the Marfan and related disorder causes
and the overall advocacy work that I do. She has been a great inspiration to me and I will never forget her love
and support. I love you Sis!.
A special Thank You to the following:
Dr.
James Heckman - BIDMC - Primary Dr.
Joseph Kannam - BIDMC-Cardio
Dr. Dwight Robinson - MGH-Rheumatology
Dr. Robert Johnson - Surgeon - Saint Louis University
Dr. Chin Hur - MGH-Gastroenterology
Dr. Aleena Banerji - MGH -Immunology
Children's Hospital Boston, MA
Beth
Israel Deaconess Emergency Unit, Boston, MA
Suffolk University - Boston, MA Dr. Michael Murray - Geisenger Health Systems Dr. Ron Lacro - Childrens - Marfan Program Dr. Michael Singh - Childrens and Brigham Marfan Programs Dr. Jacqueline Wolf -BIDMC - Gastroenterology
Amy Kaplan, former RN-Manager-NMF's/Marfan Foundation's
Information and Resource Center
If my story can help just one individual that suffers
from Marfan Syndrome
and/or related disorders, then I will be happy.
Thank you for your interest in my web site.
Please do not
hesitate to contact me at anytime.
My email address JRMARFAN58@aol.com or JRMARFAN58@comcast.net.
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