I would like to take this opportunity to say Thank You to the following individuals for their help.
wife, Kathleen, who is by my side, supporting me in my quest to make a difference in helping sufferers of Marfan Syndrome.
As a lawyer, she has aided me in applying for disability. She is willing to help other Marfan and related disorder individuals
with her legal expertise. She has also assisted me in helping others through the disability process. Contact Kathleen at firstname.lastname@example.org
My mother, family, and friends who have been at my side through the worst of my illness.
MSW, MBA, and former NMF Director .
I want to honor and thank my mother-in-law Sis Kane, who passed away during
the summer of 2013, for not only in helping me in writing and maintaining this website but her love and passion
for the Marfan cause and the overall advocacy work that I do. She has been a great inspiration to me and I will never
forget her love and support. I love you Sis!.
A special Thank You to the following:
Karen & John
Dr. Joseph Kannam - Beth Israel Hospital-Cardio
Robinson - MGH-Rheumatology
Dr. Robert Johnson - Surgeon - Saint Louis University
Dr. Chin Hur - MGH-Gastroenterology
Dr. Aleena Banerji - MGH -Immunology
Children's Hospital Boston, MA
Beth Israel Emergency Unit, Boston, MA
Suffolk University - Boston, MA
Dr. Michael Murray - Geisenger Health Systems
Dr. Ron Lacro - Childrens - Marfan Program
Singh - Childrens and Brigham Marfan Programs
Jacqueline Wolf -BIDMC - Gastroenterology
Amy Kaplan, RN-Manager-NMF's Information and Resource Center
If my story can help just one individual that suffers
from Marfan Syndrome and related disorders, then I will be happy.
Thank you for your interest in my web site.
Please do not hesitate to contact me at anytime.
address JRMARFAN58@aol.com or JRMARFAN58@comcast.net.