THE NEXT TEN YEARS:
As the 90's progressed, my symptoms did not improve. Although
my Echo's and MRI's looked good, the symptoms continued. I had several scheduled visits to my primary care physician(s), but
their take on my condition was similar to the cardiologists.
Toward the end of 1995, my symptoms got worse. Along
with the high fatigue, the elevated pains, the headaches, and the shortness of breath, I noticed at times I was getting dizzy.
In 1996 and 1997 I had to work limited part-time due to my health. I thought if I had more time to rest maybe
my symptoms would improve.
In 1998, I increased my work time not because my health improved but mainly due to monetary
reasons. I still was unable to work full time no matter how I pushed myself.
In 1999 and 2000, I increased my work
time even more due to the workload and job requirements, but still was unable to work full-time on a consistent basis. It
was near agony working during this period, but yet I pushed myself onward.
In the beginning of 2001, I cut my hours
back to more part-time and made a very important health decision. I wanted my Doctors to run a battery of tests on me to find
out what is causing these symptoms and how much of it is related to the Marfans and the medications. If we could rule out
everything but Marfans, then maybe I could get some answers. ( I have included a list of tests that have been done on me through
the 90's to present).
Through all the emergency visits, all the regular doctors visits, all the testing, maybe
finally I would get some answers and just as important, some relief. Unfortunately, most of them came back normal. In a way
it should be a blessing they did, but I knew it pointed me in the area I knew little about at the time, MARFANS.