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MARFAN SYNDROME: - A HARD LOOK -
(Excerpts from the Marfan Foundation)
MARFAN SYNDROME is a progressive, incurable, genetic disorder of the connective tissue, frequently characterized by
tall stature, long limbs and fingers, scoliosis, complications and subluxation of the lenses. The greatest threat to life
is from the cardiovascular deterioration which causes aneurysms. The associated orthopedic and opthalmological problems can
cause severe handicapping including loss of mobility, chronic and debilitating pain and blindness. Medical reporting lags
behind the reality of the severe manifestations of the Marfan Syndrome. It is only in the last few years that attention has
been directed to this disorder. At this time there in no therapy or treatment to lessen deteriorating muscular and skeletal
degeneration.
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