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File completed form with your local Social Security office. Make sure to always complete forms in full. Keep copies as back-up.
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Call regarding state disability funds.
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Contact the National Marfan Foundation - after the first denial of benefits - request a letter.
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Make appointment with personal physician - advise of filing.
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Compile Marfan support info - web pages, letters, research, etc.
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See Marfan doctors for additional support and follow-up.
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Get copies of all your medical records. Keep copies of everything in a folder.
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Look for Marfan people within your state who have been approved.
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Once you have been denied the first time, find a disability attorney that has several years experience and speak to the attorney immediately.
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Make sure attorney has all info - medical records and all above.
MOST IMPORTANT - Keep a daily health journal that lists all your symptoms, appointments, results, INR's, notes, etc.
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