MARFAN SYNDROME: JR FACT SHEET
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Jon Living with Marfan
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Becoming Disabled
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Living with Marfans
   
National Marfan Foundation
IFMSO - International Federation of Marfan Syndrome Organizations
Marfan Syndrome Life & Issues/Janis Cortese
Jeanette Navia's Marfan Life Website
Forever Theresa
Online Support Group for Marfans
Disability Info Site
WellbeingSPOT
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THANK YOU
I would like to take this opportunity to say Thank You to the following individuals for their help.

My wife, Kathleen, who is by my side, supporting me in my quest to make a difference in helping sufferers of Marfan Syndrome. As a lawyer, she has aided me in applying for disability. She is willing to help other Marfan individuals with her legal expertise. She has also assisted me in helping others through the disability process.

My mother, family, and friends who have been at my side through the worst of my illness.

Karen Wolk, MSW, MBA, NMF Director of Support Services, National Marfan Foundation for her support.

I want to thank my mother-in-law Sis Kane for helping me in writing and maintaining this website. Her passion for the Marfan cause has been a great inspiration to me.

A special Thank You to the following:
Karen & John Beliveau
Jay McGee
Martin Irish
Jane Harris
Dr. Joseph Kannam - Beth Israel Hospital-Cardio
Dr. Timothy Guiney - MGH-Cardio
Dr. Dwight Robinson - MGH-Rheumatology
Dr. Robert Johnson - Surgeon - Saint Louis University 
Dr. Chin Hur - MGH-Gastroenterology
Dr. Aleena Banerji - MGH -Immunology
Children's Hospital Boston, MA
Beth Israel Emergency Unit, Boston, MA
Suffolk University - Boston, MA

Dr. Michael Murray -BWH - Marfan Program

Dr. Ron Lacro - Childrens - Marfan Program

Dr. Jacqueline Wolf -B.I. - Gastroenterology

If my story can help just one individual that suffers
from Marfan Syndrome, then I will be happy.

Thank you for your interest in my web site.
Please do not hesitate to contact me at anytime.

My email address JRMARFAN58@aol.com


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