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MARFAN SYNDROME: - A HARD LOOK -
(Excerpts from the National Marfan
Foundation)
MARFAN SYNDROME is a progressive, incurable, genetic disorder of the connective tissue, frequently
characterized by tall stature, long limbs and fingers, scoliosis, complications and subluxation of the lenses. The greatest
threat to life is from the cardiovascular deterioration which causes aneurysms. The associated orthopedic and opthalmological
problems can cause severe handicapping including loss of mobility, chronic and debilitating pain and blindness. Medical reporting
lags behind the reality of the severe manifestations of the Marfan Syndrome. It is only in the last few years that attention
has been directed to this disorder. At this time there in no therapy or treatment to lessen deteriorating muscular and skeletal
degeneration.
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