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MARFAN SYNDROME: - A HARD LOOK -
(Excerpts
from the National Marfan Foundation)
MARFAN SYNDROME is a progressive, incurable, genetic disorder of the connective
tissue, frequently characterized by tall stature, long limbs and fingers, scoliosis, cardial complications and subluxation
of the lenses of the eyes. The greatest threat to life is from the cardiovascular deterioration which causes aneurysms. The
associated orthopedic and opthalmological problems can cause severe handicapping including loss of mobility, chronic and debilitating
pain and blindness. Medical reporting lags behind the reality of the severe manifestations of the Marfan Syndrome. It is only
in the last few years that attention has been directed to this disorder. At this time there in no therapy or treatment to
lessen deteriorating muscular and skeletal degeneration.
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